Autism Spectrum Research Studies

PARENTING RESEARCH STUDY

Purpose of the study:

The purpose of this study is to gain a greater understanding of temperament- based parental approach to addressing the needs of each child. The research is comprised of three different phases in which parents will be asked to complete several surveys. Parents will be matched according to set criteria established for the research study. They will then be assigned to two groups. Some parents will be asked to implement specific parental strategies to address the needs of their child. This can take place in their home and community environment. The research will be conducted through the mail. The research will be conducted through the mail and the researcher will send any necessary pre paid postage returned forms. The first and third phase of the research study should take approximately forty-five minutes each and the ten minute commitment each week for two months.

Seeking:

  • Parent or primary caregiver must be above the age of 18 years old and have a child between the ages of six to twelve years of age who was diagnosed by a psychologist or medical doctor as having Autism Spectrum Disorder.
  • OR

  • Parent must be above the age of 18 years old and have a child between the ages of six to twelve years old who does not have any disabilities as classified by IDEA (2004). It includes autism, Deaf-blindness, deafness, emotional disturbance, hearing impairment, mental retardation, multiple disabilities, orthopedic impairment, other health impairments, specific learning disability, speech or language impairment, traumatic brain injury, and a visual impairment, including blindness.

Reward:
Once results have been obtained, a thank you letter will be mailed to all the parents as well as $5.00 gift card to Barnes and Noble as an appreciation for participation in the study!
Interested in Learning More:

If you are interested in learning more about this research study, please contact the Principal Investigator, Tara Malka, M.A., Ed.M. at tdm33@columbia.edu

IRB #: 10-116-CR2
Tara (Malka) Gensler, M.A., Ed.M.
tmalka02@aol.com
End date: April 1, 2013

Relationship between repetitive behaviors and social play in children with ASD.

My name is Aimee Dershowitz and I am a doctoral student in clinical psychology at the University of Indianapolis. I am performing a research study for my doctoral dissertation on the relationship between repetitive behaviors and social play in children who have been diagnosed with an ASD. I am looking for people who would be willing to fill out brief questionnaires about their child. If you are interested and meet all of the following characteristics:

  • Primary Caregiver of a child diagnosed with an Autism Spectrum Disorder
  • The child diagnosed with an ASD is between the ages of 3 and 11
  • You (the caregiver) are 18 years of age or older

Please contact me at dershowitza@uindy.edu providing your mailing address, with the subject heading “Dissertation Research.”

Time Commitment: 25-35 minutes
Compensation: Entered into a raffle to win one of three $25 Visa gift cards

IRB #: 0448
End date:January 22, 2013

Invitation to participate in research study: Abilities, Achievement & the Autism Spectrum

Hi,

My name is Susan Wade and I am conducting research towards a PhD on “Abilities, Achievements and the Autism Spectrum” with Dr. Leonie Kronborg, in the Faculty of Education at Monash University (Australia).

I am conducting this research to find out about the abilities and achievements of individuals on the autism spectrum and to find ways that strengths and abilities of these individuals can be developed.

This study invites the participation of adults on the autism spectrum (with a diagnosis) and people with knowledge of an individual on the autism spectrum (any age with a diagnosis) that can help the researcher learn about high abilities and achievements. Participants are sought from the following 5 groups:

  • Adults with an ASD
  • Parents
  • Teachers
  • Psychologists
  • Mentors & Coaches

The study involves an online questionnaire (approximately 15 minutes) and an option to take part in interviews conducted by e-mail.

Full details of the study can be found in the explanatory statement by ollowing the link to the online questionnaire
http://tinyurl.com/monasheducation

Please feel free to pass on details of this study to anyone you know who may be willing to participate.

Kind regards,

Susan Wade
PhD Candidate, Monash University, Australia
Susan Wade ~ susan.wade@monash.edu
This study has approval from the Monash University Human Research Ethics Committee
Project Number: CF11/3664 – 2011001929

Career Experience for Young Adults with Asperger’s Syndrome

Dear Caregivers,

If you are a caregiver of a family member with a formal diagnosis of (High Functioning) Autism, Asperger’s syndrome or Pervasive
Developmental Disorders – Not Otherwise Specified (PDDNOS), please consider participating in this study. I am an educator/psychologist working at the University at Buffalo. I am interested in understanding your experience to help planning for effective services.

This study has been approved by the University. This study will take no more than 1.5 hours. There will be no identifiable and personal information that we will collect, therefore, your privacy is assured.

A demographic form and several surveys related to your caregiving experience career will follow. Thank you again for your consideration and interest in participating. Please proceed by entering the following weblink:

http://www.surveymonkey.com/s/caregivinghfasds

Yours sincerely,

Gloria Lee, Ph.D.
Associate Professor of Psychology

Contact: (716) 645-1123
E-mail: glee4@buffalo.edu

IRB #: 2336

End date: On going

New Study on Families of Children and Adolescents with Autism Spectrum Disorders

Hello, my name is Jenna Cacciola and I am currently a 3rd year clinical psychology doctoral graduate student at the University of Indianapolis in Indianapolis, IN. I am conducting a dissertation research project which seeks to examine the association between severity of symptoms in children and adolescents diagnosed with Autism Spectrum Disorders (Autism, Asperger’s Disorder, and Pervasive Developmental Disorder-Not Otherwise Specified) and family history of psychiatric disorders. In order to gather data for my research study, I am asking parents/caregivers who have a child that has been diagnosed with an ASD to complete an anonymous survey on PEDS On-line.

If you are interested in participating in my research study, please click on the following link which will redirect you to my survey on PEDS on-line, which is a secure website (https://pedsnet.com/CAP/SitePages/AutismSurvey.aspx). It is anticipated that the survey will take approximately 20 to 30 minutes to complete, depending on the size of your family. You can participate in the study if you meet this criteria: your child or family member has a diagnosis of an ASD is between the ages of two and 16 years old.

If you have any questions about the current study, please feel free to contact me via email at cacciolaj@uindy.edu. You can also contact my
dissertation advisor, Dr. Jacqueline Hess at 317-788-3484; 800-232-8634 (x3484; toll free) jhess@uindy.edu. Thank you in advance for your
participation in my research project.

Link: https://pedsnet.com/CAP/SitePages/AutismSurvey.aspx

End date: January 31, 2013

IRB #: 0490

Experiences of Families of a Child Diagnosed with Asperger Syndrome or High-Functioning Autism

I am a student at Yeshiva University’s Ferkauf Graduate School of Psychology, and am working to complete my PsyD in School-Clinical Child
Psychology. I am conducting a study to explore the experiences that families have with the educational system in relation to their children
who are diagnosed with Asperger’s Syndrome. I am looking for families who have a boy in middle school (5th-8th grades) who would like to participate. The study involves a face-to-face interview with me at a location of the family’s choice; the interview will take approximately 2 hours to complete. The interview focuses on the experiences that the family has had with the educational system throughout their child’s school years. The child does not need to participate; only the caregiver(s). My contact information for interested families is as follows:

Margarete Andrews
(908) 752-2427
margarete516@gmail.com

IRB#: 2012-279

Study On How Individuals With Autism Spectrum Disorders (ASD) Think.

The NIH Autism Center for Excellence at the University of Pittsburgh is studying how individuals with autism spectrum disorders (ASD) think. Our research hopes to learn how areas of the brain communicate with each other and how this alters the way people with ASD see the world and process information. We have multiple ongoing studies that are looking for a wide range of ages.

Accepting: Verbal Individuals, Between the ages of 8-65 with an IQ of 80 or greater.

If you or your child participate, you will receive a research diagnostic report including; IQ, language and problem-solving, and social thinking tests. Testing times are scheduled based on the participant’s availability. Participants are compensated for each test they complete plus travel expenses are paid for by the study. There are No Costs involved for participating in this research.

Testing may include any or all of the following: Diagnostic Testing, Computer Testing, Paper and Pencil Tests, & fMRI Scan-a painless way to take pictures of the brain.

It is hoped that the results of these studies will make significant improvements in diagnosis and treatment in the future. To determine if you or your child is eligible, please contact: 1-866 647-3436, autismrecruiter@upmc.edu or visit our website at www.pittautismresearch.org for a consent form.

End date July 31, 2012

IRB# 0703004

Early Development of Brain Connectivity in Autism

You and your child may be interested in participating in our study: Early Development of Brain Connectivity in Autism. This study is the first effort to examine the functional communications between distant parts of the brain (known as functional connectivity) in toddlers with autism spectrum disorders. Functional connectivity is thought to be at the very basis of social, communication, and sensory integration processes that are impaired in children with a diagnosis of autism spectrum.

We are recruiting families who have a child between 3 and 5 years old with a diagnosed or suspected autism spectrum disorder.

The study consists of a no-cost diagnostic evaluation and an fMRI scan during the child’s natural sleep (at night). Upon completion of the study, you will receive a written report summarizing the results of the evaluation visit. Participation is voluntary and compensation will be provided (and travel expenses).

If you are interested in learning more about participating in this study, please contact Rebecca Grzadzinski at 212-263-4673 or rebecca.grzadzinski@nyumc.org.

Thank you in advance for your time and assistance. We look forward to working with you in the near future!

Sincerely,

F. Xavier Castellanos, M.D.

Brooke and Daniel Neidich Professor of Child and Adolescent Psychiatry

Eligibility Criteria: Children between 3 and 5 years of age with a diagnosis (or suspected diagnosis) of an autism spectrum disorder. Exclusions, such as medical conditions, and scores on diagnostic testing also apply. Please contact us directly for any questions regarding exclusions.

Principal Investigator: F. Xavier Castellanos

Contact Information:
Rebecca Grzadzinski, Research Assistant
Phone: 212-263-4673
Email: rebecca.grzadzinski@nyumc.org

Phyllis Green and Randolph Cowen Institute for Pediatric Neuroscience
NYU Child Study Center
215 Lexington Avenue, 14th floor
New York, NY 10016

Expiration Date: On going

IRB Approval Number: 08-929

A longitudinal MRI Study of infants at Risk for Autism

Research study announcement from the Center for Autism Research at the Children’s Hospital of Philadelphia

Do you have a child diagnosed with autism spectrum disorder who has a younger infant sibling?

The Infant Brain Imaging Study (IBIS) at the Center for Autism Research, The Children’s Hospital of Philadelphia is looking for participants!

Twin and family studies have shown that younger brothers and sisters of children with autism are at a higher risk of developing autism than those children who do not have relatives with this condition. Information gained about early brain development in children with autism may improve methods of early detection and intervention for infants who may be at risk for developing autism. Earlier identification and treatment may lead to better outcomes for these young children and their families.

At the Center for Autism Research, The Children’s Hospital of Philadelphia, we aim to identify very early brain features that may be characteristic of infants at risk for autism. To do this, we are actively seeking to enroll families who have a child with an autism spectrum disorder and an infant sibling 6 months old or younger for the Infant Brain Imaging Study (IBIS). Developmental evaluations and MRI scans of your infant’s brain will be completed at 6, 12, and 24 months of age. Compensation for participation is also provided, and travel arrangements can be made for families traveling from further distances.

For more information, please contact:

Deb Dunn
Phone: 1-866-570-6524 (toll free)
Email: autism@email.chop.edu

Protocol No: 2007-12-5689
Protocol Date: 03-03-2008
Dr Robert T Schultz

Neurocircuitry of Developmental Differences in Social and Repetitive Behaviors: MRI, fMRI and TMS Studies

Purpose: This study uses functional brain imaging and noninvasive brain stimulation techniques to study the brain basis of developmental disorders. Functional magnetic resonance imaging (fMRI) and transcranial magnetic stimulation (TMS) will be used to study the neurocircuitry of certain symptom clusters in developmental disorders.

Study Design:Subjects with Autism, Asperger’s Syndrome, and pervasive developmental disorder – not otherwise specified will be compared to healthy controls using a panel of neuropsychological tests, fMRI, and TMS. The fMRI paradigm is a passive task requiring the subject to watch a short series of films in the scanner. The form of TMS used in this study is low frequency TMS, which is minimal risk.

Volunteers should be between the ages of 18 – 35 and will receive a compensation of $15/hour plus $15 per procedure.

For more information, please contact:

Alexandra L Sporn, M.D.
Assistant Professor of Clinical Psychiatry
Division of Brain Stimulation and Therapeutic Modulation
Columbia University College of Physicians and Surgeons
New York State Psychiatric Institute
1051 Riverside Drive, Unit 21
New York, NY 10032

Office: 212-543-5647
Fax: 212-543-4284
Email: BBClinic@columbia.edu

IRB protocol #5438

Philadelphia College of Osteopathic Medicine

The purpose of this research is to find out how young people with Asperger Syndrome (A.S) and others view their social interactions and skills. Your child may be in this study if they have been diagnosed with AS and are between the ages of 10 – 17.

If you and your child decide to take part in this study, you will both be asked to complete separate questionnaires. Your child will also be asked to complete a one-on-one interview with me. The study will be held at your home in 2 sessions each taking about 45 minutes and will require a total of 90 minutes of you and your child’s time. When the study is completed, you and your child will be paid with a $10.00 Barnes and Noble gift card for taking part.

I would like to audiotape your child’s interview for the purpose of later transcription and analysis.

For more information about this project, please contact:

Philadelphia College of Osteopathic Medicine
Philadelphia, PA

Shawn Dolan
Phone: 610-529-0644
Email: dolanshawn@hotmail.com

Dr. Daniel Ingram
Phone: 215-871-6947

Protocol number H07-031

Research Survey for University at Buffalo

I am posing this message to ask for potential participants who would consider helping me to conduct a research in understanding the psychosocial adjustment of the family member raising/having a child with Asperger’s Syndrome.

Participation in this study involves completion of a set of online questionnaires that will take up to 1.5 hours to complete. The content is to understand stress, resources, coping, and personal strengths in relation to your own mental wellness.

For more information about this project, please contact:

University at Buffalo
Buffalo, NY

Gloria Lee, educator/psychologist
Phone: 716-645 2484 x1068
Email: glee4@buffalo.edu

IRB number 2336

Study of Speech Treatment for Young Children with Autism Spectrum Disorders Who Do Not Talk Yet

Purpose: We at the Yale Child Study Center are conducting a research project for children with ASD who are between three and six years of age and not yet talking. We are looking for children in this age range who say fewer than 10 words. We will be contrasting two different treatment programs, one that uses very structured discrete trial methods, and one that is more naturalistic. In order to study these treatments most effectively, we will need to assign children to treatments randomly. That means that you will not be able to choose which treatment your child gets, or to change the treatment group to which s/he is assigned. Both treatments will be delivered individually for 12 weeks, with three 45 min. sessions per week by a specially trained speech-language pathologist. No matter which treatment your child receives, we will ask all families to participate in parent training also. This training will help you carry over the treatment once the 12 weeks are over. We will also ask you to bring your child back six months after treatment ends so we can see whether the effects of the treatment have lasted over time.

Criteria for Participation:

  • Children with a diagnosis of ASD
  • Ages 3 and 6 years
  • Uses fewer than 10 words
  • Must be able to attend treatment sessions at Yale Child Study Center 3x/week for 12 weeks
  • At least one parent must be able to participate in 9 evening parent training sessions

Elizabeth Schoen, M.S. CCC-SLP
Phone: 203-737-1267
Email: elizabeth.schoen@yale.edu

Moira Lewis, M.S. CCC-SLP
Phone: 203-764-7490
Email: moira.lewis@yale.edu

HIC# 0612002071

The Simons Simplex Collection

The Simons Simplex Collection is a bold new initiative to search for the causes of autism. Researchers at eleven sites in North America will collect DNA samples from families with just one child affected by an autism spectrum disorder. This valuable data will be available to the best scientific minds in the world to search for clues that will lead to important breakthroughs. The Simons Foundation, a New York-based philanthropic organization, has committed millions of dollars to the Simons Simplex Collection, and other cutting edge autism research.

Eligibility Requirements

  • One child with an autism spectrum disorder (ASD), age five or older,
  • One or more siblings without ASD, age four or older, and
  • Both biological parents who are willing to participate.

Three Research Components

  1. Children with ASD will receive a free behavioral assessment.
  2. All family members will donate blood, a source of DNA. The samples will be stored without identifying information to protect the privacy of individuals and families.
  3. Families will be contacted for follow-up questions as researchers pursue promising findings.

Columbia University / New York State Psychiatric Institute
Simons Simplex Collection
1051 Riverside Drive, Unit 74
New York, NY 10032
Phone: 212-543-6705
Email: autismresearch@childpsych.columbia.edu

IRB: Investigations Committee protocol #5302

Seeking Adults with Autism or Asperger’s Disorder to Assist with the Development of a Diagnostic Questionnaire

We are developing a questionnaire to identify adults with autism and asperger’s disorder. It consists of 78 brief questions that are answered by making a check mark in one of four columns. The questions concern general experiences and attitudes and not personal information. It takes less than one hour to complete, and does not need to be completed at one time.

All information on the questionnaire is coded by a computer and kept strictly confidential. This insures that no one can ever be identified by name or otherwise be recognized.

The California Institutional Review Board, Inc. (www.cpmc.org/professionals/research/irb) and the California Graduate Institute (www.cgi.edu) have approved the questionnaire. All professional, State of California, and Federal Guidelines for protection of human subjects are being followed to assure confidentiality. An "Informed Consent to Participate in Research" to sign will be given to you before you are given the questionnaire.

We prefer to have you fill out the questionnaire when we are present or via an e mail/phone combination so we can answer any questions you might have. We will be glad to arrange to visit you at you convenience or we can meet at our office near UCLA in West Los Angeles. We will reimburse you for any expenses that you have in connection with helping us (transportation, etc.) and a subject fee of ten dollars is available.

There is obviously a great need for an objective questionnaire to assist individuals and professionals in identifying adults with autism and asperger’s diagnosis. We thank you in advance for considering to help us in this important project.

Email: eritvo@aol.com
Phone: 310-476-5109

Edward R. Ritvo MD is an internationally recognized medical expert, researcher and pioneer in the field of autism and Asperger’s disorder and co-author of the official diagnostic criteria in the DSM (Diagnostic and Statistical Manual of Mental Disorders). Much of what is known about these disorders today is based on his painstaking research and groundbreaking discoveries. In his new book, Understanding the Nature of Autism and Asperger’s Disorder, Forty Years of Clinical Practice and Pioneering Research he shares his forty years’ experience and opens his extensive UCLA casebook to the reader.

Addendum

Dear Adult Friends With Autism or AS,

We are writing to thank you for helping us in the past to develop a questionnaire (THE RAADS) to assist clinicians in diagnosing autism and Asperger’s disorder, to assist us in getting better services for individuals on the ASD and to clarify diagnostic issues.

So far we have given the questionnaire to over fifty adults with autism and Asperger’s disorder and fifty without for comparison. The results show that the questionnaire identifies those with autism and Asperger’s disorder very clearly. We have reported these results in an article accepted for publication in the Journal of Autism and Developmental Disabilities, (in press) and will be glad to send you a copy if you wish. Just let us know by phone, fax, or e-mail.

At this time we need you to fill out the questionnaire again. This is a very important part of the research because we need to know if the questionnaire is "reliable" in a scientific way. That means, does it give the same results when you give it a second time as it did the first time. For example, to see if a thermometer is "reliable" you would have to take someone’s temperature a second time and compare the temperature it give to the first time to see if it is "reliable."

All the information we need this time is your name, which we will match with you computer coded first test, so please ignore the rest of the questions on the first page of the questionnaire.

We are always be available to answer you questions and offer any advice we can about the questionnaire or whatever else you want to ask us.

We thank you for your past help and for assisting in the "reliability" study by refilling out the questionnaire again.

If you have never taken the questionnaire and are interested in doing so, we are expanding the original study and need new adult individuals with a diagnosis of AS or autism as well.

Best regards,

Ed and Ari Ritvo
Riva Ariella Ritvo PhD
The Yale Child Study Center
Edward Ritvo MD
UCLA School of Medicine
The Ritvo Clinic
Phone: 310-825-0220

New Jersey Answers for Autism Survey

Scientists at the New Jersey Medical School are establishing a comprehensive Autism Spectrum Disorders (ASD) database.

The New Jersey Answers for Autism Survey asks many questions about the development, functional characteristics and medical status of persons with autism.

The goals of the New Jersey Answers for Autism Survey are to identify possible ASD risk and protective factors, to characterize ASD sub-groups and to develop a scientific understanding of how persons with ASD change over time and in response to interventions. Information arising from the Survey will also be used to inform health and educational professionals and policymakers about the prevalence and distribution of autism and the evolving status and needs of persons and families affected by autism.

If you have a child or family member with an Autism Spectrum Disorder, or, if you yourself are such a person, you are asked to join the New Jersey Answers for Autism Survey.

The person with ASD should be a New Jersey resident and diagnosed with any of the following disorders: Autistic Disorder, Asperger Syndrome, Pervasive Developmental Disorder (PDD or PDD-NOS), Fragile X or Rett Syndrome, Childhood Disintegrative Disorder, Landau-Kleffner Syndrome, or be showing autistic tendencies or symptoms.

Participation with the Survey is voluntary and confidential. This research study is approved by the Institutional Review Board of the New Jersey Medical School. Completing the New Jersey Answers for Autism Survey questionnaire requires approximately one hour. Annual follow-up with the Survey is requested, but optional.

All Survey materials are available in Spanish also.

To participate in the New Jersey Answers for Autism Survey or to get more information, please call: 888-699-8038 or e-mail autism@umdnj.edu requests and questions.

Ending Date July 1, 2014

The Simons Baby-Sibs Project of Social Neuroscience in Infancy

Purpose: To examine the early development of basic social skills in infants. The study will target children that are developing typically as well as children who are experiencing various developmental delays and autism spectrum disorders (ASD). We will examine the infants’ developmental skills, speech, language, and communication skills, social, motor, and adaptive skills. We will also study the way infants process information about people, recognize faces, and how they attend to speech sounds. This research will lead to the development of new methods to diagnose developmental delays and ASD in infants and toddlers. It will also help us identify key areas for early intervention and new methods of diagnosing delays.

Criteria for participation:

  • Newborns with older siblings who were diagnosed with ASD
  • Newborns with significant complication of pregnancy or birth
  • Newborns without significant complication during pregnancy or birth

Irene Zilber
Phone: 203-785-6237
Email: irene.zilber@yale.edu

IRB: Yale Human Investigations Committee protocol #0509000617

Diffusion Tensor Imaging in Autism and Asperger’s Disorder

Mount Sinai School of Medicine Neuroscience PET Laboratory Research Study. We are looking for individuals with autism and/or Asperger’s Disorder (18-45 years old) to participate in a neuroimaging research study.

The purpose of this study is to learn more about which areas of the brain are involved in attention and how they connect with each other. By learning more about the mechanisms of attention, the investigators may help the discovery of new treatments for autism, Asperger’s Disorder, and other neurological and psychiatric illnesses.

Your participation will involve three visits to Mount Sinai School of Medicine. The first visit will involve a diagnostic interview to clinically verify your diagnosis. In addition, you will receive a Positron Emission Tomography (PET) scan and a Magnetic Resonance Imaging (MRI) scan on separate days.

If you receive both PET and MRI scans you will receive $200 in reimbursement for your time and expenses. You will receive $100 if you only have one of the scans.

If you are interested in participating in our research study or if you have any questions, please contact Liz LiCalzi.

Liz LiCalzi
Phone: 212-241-6314
Email: elizabeth.licalzi@mssm.edu
Website: http://www.mssm.edu/psychiatry/PETlab.shtml

LDA Social Disabilities Research Project

Yale University
Website: http://info.med.yale.edu/chldstdy/autism/research.html

UMDNJ-RWJ Medical School Childhood Autism Study

Children ages 5 – 17 are needed to participate in a 12 week clinical drug study on autism at UMDNJ-Robert Wood Johnson Medical School, Division of Child and Adolescent Psychiatry, Piscataway.

The purpose of the study is to explore treatment options for children with autism. To be eligible, participants must have a diagnosis of autism and participants must be willing to undergo an interview. The interview and questionnaires may take up to four hours to complete. The interview can be completed at the second visit if necessary. Those who qualify will be closely monitored by the study doctor. Medication will be provided at no cost.

We are looking for patients with a diagnosis of autism or PDD-NOS. They also have to be minimally verbal or non-verbal, which would exclude those with Asperger’s.

Sherie Novotny, MD, Principal Investigator

For more information call Kurt Bopp, Clinical Research Coordinator, at 732-235-5690.

Transforming Parent-Child Interaction In Family Routines

Recruitment of Families for NIH Behavioral Intervention Study

The study is a five-year NIH funded research project designed to investigate a comprehensive approach to behavior support with families of children with developmental disabilities and problem behavior, within valued family routines. The study will be conducted at the University of British Columbia and the University of Medicine and Dentistry of New Jersey.

A collaborative approach, with researchers and parents working together, will be utilized to help improve the behavior of the child, and the quality of life for the family. Support activities will take place in the home and community of the family, and researchers will periodically videotape the problematic routines, as a means of data analysis. Only the researchers will view the videotapes, they will be stored in a secure location, no confidential information will be shared with anyone outside of the research team, and the tapes will be destroyed following the completion of the study.

The research activities will include assessments and support. A comprehensive functional assessment of the problem behaviors will be conducted, along with an assessment of problematic family routines. The researchers will then work with family members to develop positive behavior support plans surrounding the behaviors. They will also provide implementation and follow-up support throughout the study.

Criteria: The study is recruiting families that meet the following criteria:

  • Have a child with a formal diagnosis of a developmental disability (mental retardation, autism, Asperger’s Syndrome, pervasive developmental disorder)
  • Focus child is between three and eight years old and lives in a two-parent household
  • Both parents / guardians speak English proficiently
  • Focus child engages in observable problem behaviors in a minimum of two typical home routines, and two typical community routines, (or three home routines and one community routine)
  • Parents do not perceive themselves to be "in crisis" due to the child’s behavior or other family problems
  • Parents/guardians agree to have an observer videotape child-parent interactions in typical routines in the home and community
  • Both mother and father are willing to act as an interventionist with their child
  • Family is willing to participate in the study for at least four to five years
  • Family is planning to stay in same locale over the next four to five years

Parents interested in participation in this University of Medicine and Dentistry of New Jersey study should contact Rick Blumberg (rick.blumberg@umdnj.edu) at 732-235-9302 or Sharon Lohrmann (sharon.lohrmann@umdnj.edu) at 732-235-9306.

Asperger Syndrome Research Study

Brenda Smith Myles and her colleagues from the Department of Special Education at the University of Kansas are soliciting children and youth between 12 and 18 years old to participate in a study that looks at some unique characteristics of children and youth diagnosed with Asperger Syndrome.

If you agree to have your child participate in this study, you, your child, and your child’s teacher will be asked to complete some assessment measures. Approximately one hour of your child’s time as well as one hour of yours and your child’s teacher’s time is needed to complete the measures. Parents will also complete an interview over the phone.

Although participation will not directly benefit you, we believe that the information that you provide will be useful in understanding and in designing future interventions that will help individuals with Asperger Syndrome succeed at school, home, and in work environments.

You should be aware that even if you agree to participate, you are free to withdraw at any time. If you agree to have your child participate or if you would like more information feel free to email Dr. Myles at asdresearch@ku.edu.